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| The Act is our very own publication |
| which highlights interesting articles |
| which covers the scientific, medical, |
| socio-cultural, ethical, legal and |
| economic dimension of AIDS and HIV |
| infection. It also features past, |
| current and future activities of |
| Action for AIDS, and how you too |
| can get involved. |
| This is the online version of our |
| latest periodical. For archival purposes, |
| we will attach past issues |
| for your reference when they |
| are ready. |

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AfA SUBSIDY SCHEME FOR ANTIRETROVIRAL
MEDICATIONS FOR PERSONS INFECTED
WITH HUMAN IMMUNODEFICIENCY VIRUS
Recent studies have demonstrated that treatment with multiple (2 or 3) anti-retroviral medications can confer marked benefit to persons living with HIV/AIDS (PWA), both in the late as well as the earlier stages of HIV infection. In many instances such therapy has enabled infected individuals to return to work and to lead a relatively normal and productive lives. They spend less time in hospitals, saving both time and money. These positive effects benefit not only the infected persons but also their families, who will be able to resume their own lives and careers, instead of tending to their ill relatives and loved ones. Furthermore the community and society as a whole benefits. Keeping PWAs in good health and back at work reduces the need for expensive inpatient medical care facilities, and fewer medical and paramedical staff to maintain. The positive psychological and emotional benefits are enjoyed by all. Ultimately there may actually be a positive saving when both the indirect and direct costs are factored in. These new medications range in price from $540 per month (for 2 drugs) to $1100 per month (for 3). These are prices which few PWA or their families are able to afford. Currently only about 30% of infected Singaporeans are receiving these new life-saving medications. None of these drugs are publicly subsidised at present. In the light of these new medical developments, and the fact that many cannot afford the medictions, Action for AIDS will initiate a fund to subsidise anti-retroviral medications for PWA. Unfortunately as our funds are limited not all PWAs can receive assistance. We will therefore rely on recommendations from both physicians and counsellors on which PWA will benefit most from the subsidy, based on both medical as well as social criteria. On our part AfA will place a higher priority on those who are active in community welfare and education programmes. On top of our list are PWA who have the courage to come out publicly about their infection. They would be our most effective counsellors and educators, much more useful that expensive mass media campaigns. We feel that they deserve our utmost support.
THE PRINCESS DIANA AIDS CHARITY GALA - The tragic and sudden death of Diane, Princess of Wlaes, stunned and saddened millions the world over. Well known for her generous patronage of AIDS charity events in the UK and USA, The Princess had most graciously agreed to be the guest-of-honour at the gala on the 23rd of September. She was also in her short trip to Singapore due to vist with PWA and CDC, and to have a private lunch with invited AIDS activitists from Malaysia, Thailand, Indonesia and Phillippines, where she was to learn about the AIDS situations in these countries and give moral support for their efforts. Alas it was not to be. The organising committee felt that it was fitting that the event must not be cancelled. The evening will carry on and be dedicated to the memory of Princess Diane, whose contribution to the AIDS cause has touched the lives of so many people. This event has been made possible with the support of Club 21 Pte Ltd, in particular Mrs Christina Ong, and the gala organising committee comprising Ms Elizabeth Khoo and Ms Tina Lee. Mrs Ong and the Club 21 group of companies has in the past been one of our main supporters and sponsors. This time she and the committee have put in time and energy beyond the call of duty. They deserve our greatest admiration and most heartfelt gratitude. |
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What would you do if you found out you had AIDS? Where would you get support and how do you think people will treat you? What do you think governments should do? These are some of the hard questions tackled by the students from the International School of Singapore who hail from different countries, but who share common fears, thoughts and opinions about AIDS. AIDS is not a big topic in Italy ... I never heard anyone speak about AIDS or about how a person can get it or prevent it. Being a woman, I believe that people will speak about me behind my back and say that I must have slept around with lots of men in order to get it. If a prostitute got tested positive and lost her job, the government should help her start a new life with a place to stay and a job. This is so that she wouldn't feel as if she deserved to get AIDS because of a job she got pushed into doing by her family to get money. Women still get discriminated in the world and I think that AIDS should not be any excuse to treat them any differently. Aged 18, Italy
Aged 17, Sweden
Aged 17, Japan
Aged 18, China
Aged 18, Indonesia
Aged 17, England
Aged 15, Philippines
Aged 15, Japan
Isabelle, Aged 15, Hong Kong British
Sharon, Aged 17, China
Aged 18, Thailand.
Aged 17, Pakistan
Aged 16, Japan
Aged 15, Japan
Mary, Aged 17, Japan
Satsuki Yabushita, Aged 17, Japan The government thinks that if they teach students about sex, they will be interested in it and try it. But if they have insufficient information and have casual sex, it would be really dangerous. Aged 17, Japan
Aged 16, India
Action for AIDS would like to thank and honour the ISS for its marvellous contributions, not only to AfA but also to Singapore as a nation. We sincerely hope that other schools will follow their lead. |
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Some non-government organisations (NGOs) and individuals are using human rights approaches to challenge HIV-related discrimination. Respecting human rights means that all persons are treated as equal in human worth and dignity, whoever they are. A Universal Declaration of Human Rights was agreed upon in 1948 and has since been signed by almost all nations. There are more recent international agreements on rights which are legally binding for nations which have signed them. Of course, human rights are not o APCASO (Asia Pacific Council of AIDS Service Organisations) has developed a set of guidelines based on internationally recognised human rights and applying them to HIV. The guidelines will help NGOs define and document HIV-related discrimination. The APCASO guidelines also make it easier to campaign for policies and programmes that respect nly relevant to HIV - many people do not have access to minimum basic human rights. But there are some forms of discrimination that directly affects people living with HIV or make some groups of people more vulnerable to infection. human rights as well as provide better care and enable people to reduce their risk of HIV infection. The following are excerpts from the APCASO Compact on Human Rights:
Everyone has the right to live one's own life without any unnecessary interference from whatever source. A person's privacy, family and homelife, physical and moral integrity, honor and reputation should be respected and protected at all times. No person should be compelled to divulge information regarding their HIV-positive status nor be compelled to undergo any examination or process designed to determine such status. When a person voluntarily agrees to undergo an examination to determine such status, pre- and post-test counseling should be provided. A person's identity and HIV-positive status should not be subjected to public or private inquiry and publication. All information related to a person's health status should be considered private and confidential and may be shared only with the consent of the person voluntarily given after having been fully appraised of the purpose of such inquiry and the intended use of such information including the possible consequences of the use and publication thereof. Any individual or entity acquiring such information has the obligation to use the same only for the purpose authorised. There must be appropriate safeguards to protect such information from unauthorised use and access. The standards would be breached in the following situations:
B. Right to Liberty and Security/Freedom of Movement The right to liberty, security and freedom of movement includes the right against such measure as segregation, quarantine or isolation, unreasonable searches and seizures, as well as restrictions on the exercise of their right to movement within the country or any country, solely on the basis of health status, the suspicion of having HIV/AIDS, or by reason of association with identified 'high risk groups'. The guarantees and protection provided by law to the general population against unlawful intrusions into these rights, shall not be diminished or denied solely on the basis of health status. The standards would be breached in the following situations:
C. Freedom from Inhuman and Degrading Treatment or Punishment Human dignity is inherent in any person regardless of one's sex, age, social, cultural, ethnic or religious affiliation, social standing and sexual preference. All measures for prevention and control of HIV/AIDS should not result in inhuman or degrading treatment or punishment. In addition, the state has the obligation to protect vulnerable groups against affronts to human dignity. The state should not initiate, encourage, condone or tolerate any act of omission which will result to ridicule, vilification, isolation, segregation of or discrimination against people with HIV/AIDS, those suspected of having the disease, or those associated with or involved in 'high risk groups'. The standards would be breached in the following situations:
D. Right to Work The right to work includes the right of equal opportunity of employment, security of tenure, common and favorable conditions of work, and the right to form and join trade unions and workers organisations. People with HIV/AIDS who are not otherwise incapacitated to perform work should be guaranteed access to opportunity for work, security of tenure, including the enjoyment of benefits and other terms and conditions which are extended to other workers. The right to work includes freedom against all forms of discrimination in the workplace. The standards would be breached in the following situations:
E. Right to Education The opportunity of access to, availment of and continued enjoyment of education and facilities to public or private education, which are offered to and/or regularly enjoyed by the general populace should not be denied, nor should restrictions be imposed upon, people with HIV/AIDS, those suspected of having HIV/AIDS, or those belongings to so-called 'high risk group'. In all educational institutions, people with HIV/AIDS, should be subject only to the same rules and regulations that apply to other, and should not be subjected to additional burdens by reason of their HIV status. The standards would be breached in the following situations:
F. Right to Social Security and Services Social Security services and facilities, with particular emphasis on public insurance, medical and health care services, which are enjoyed by the rest of the community should not be denied to, diminished, nor should additional restrictions be imposed on their availment and enjoyment by people living with HIV/AIDS or so called 'high risk group' unless a proper medical or scientific justification can be shown. The standards would be breached in the following situations:
G. Right to Equal Protection of the Law Act. 7 of the Universal Declaration of Human Rights, should be respected at all times in dealing with the AIDS pandemic. Consonant with this principle, the state should adopt and promote the policy of inclusion in addressing the plight of people living with HIV/AIDS. In pursuit of this policy, the state should institute safeguards to ensure the equal protection of the law, and protection from discrimination for people affected by the AIDS pandemic. States must regulate against discriminatory practices of private institutions aimed at HIV-positive individuals or those thought to be at risk of infection, such as the practices of insurance companies requiring mandatory testing or committing breaches in medical confidentiality, the denial or reduction of insurance coverage, and the conduct of threshold testing. Policies and legislation which further marginalise the position of women in society and perpetuate gender imbalances must not be tolerated. H. Right to Marriage and Family Life Men and women of competent age have the right to marry and found a family. Even in the case of people with HIV/AIDS, their right to marry, found a family, form relationships, have children based on sound and responsible behaviour should be recognised and respected. The standards would be breached in the following situations:
I. Right to Treatment and Care Governments must make every effort to ensure that all people with HIV/AIDS receive the highest attainable standard of medical care, counselling, treatment and support, free from discrimination and undue financial burden. Citizens are entitled to receive accurate, clear, current, culturally-sensitive and morally-impartial information about the nature of the AIDS epidemic and the means of transmission of the HIV virus. Equally, access to condoms and clean needles should be regarded as essential to the decision- making of individuals and the self-empowerment of communities. J. Right to Self-Determination of Affected Groups Affirmative action programmes for stimatised and disadvantaged groups such as people with HIV/AIDS, women, sex workers, injecting drug users and homosexuals should be implemented, having as their primary objective voluntary behaviour change, the empowerment of individuals groups and communities and the enhancement of human dignity. It is incumbent upon the state to create and/or to stimulate a social, cultural, economic and political environment which eliminates barriers to the full participation by people with HIV/AIDS, and other affected groups, in all aspects of community life and decision-making. Such barriers include poverty, prejudice, discriminatory regulatory practices and the perpetuation of human rights abuses. This can be done by:
Since the beginning 1997, Citra Usadha Indonesia Foundation has served as the secretariat for APCASO. For more information on APCASO, you may write to:
Citra Usadha Indonesia Foundation
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The Ministry of Public Health has announced a national medium- and long-term plan of action for HIV/AIDS prevention and control. The plan involves central and provincial government departments responsible for budgets, education, scientific research, media campaigns, and law enforcement. Under the plan, a nationwide HIV/AIDS monitoring network of some 400 clinics is to be established by year 2000. In addition, an advanced national HIV/AIDS laboratory along with modern laboratories will be set up in all provinces, autonomous regions, and municipalities. Other areas include promoting AIDS awareness via government-controlled mass media and special agencies in schools and among high risk groups, adopting prevention methods used by other countries such as greater condom use, and making law enforcement agencies responsible for cracking down on illegal blood supply, drug abuse, and prostitution. The current number of reported cases of HIV infection in China is low relative to its population of 1.2 billion. To date, there are 5,157 known cases of HIV infection, up by 856 cases from the 4,305 reported in early 1996. Experts, however, say that the actual number of HIV-infected individuals in China could amount anywhere from 50,000 to 100,000 owing to inadequate detection methods. "Experts fear that the next battleground for HIV/AIDS after Africa may include China, even though China is still a low-incidence country in terms of reported cases of HIV/AIDS," says Arthur Holcombe of the United Nations Development Programme (UNDP). Similar sentiments were voiced by Chinese AIDS experts, Chinese government officials, and representatives of multilateral donors attending a national conference on HIV/AIDS prevention and control in Beijing last October. Both experts and officials, however, are optimistic about controlling the spread of HIV in China. Screening clinics and testing laboratories are located across the country. In addition, 42 monitoring centres in China's big cities conduct tests twice annually on high risk groups. Experts urge the establishment of similar facilities in vast rural areas and smaller and medium-sized cities. Chinese pharmacologists are also developing Chinese herbal medicine to treat AIDS. In the area of prevention, government and non-government institutions and the mass media participate in large anti-AIDS publicity campaigns around World AIDS Day. Finally, financial and technological supports from multilateral donors aid in China's AIDS research and prevention. Donor financial support has totaled $17.4 million, while the UN and EC have assisted in China's understanding of other countries' efforts in combating HIV/AIDS. Holcombe of UNDP says that: "Unlike India and Thailand, China still has the opportunity to stop the spread of HIV/AIDS. But we must not lose valuable time."
The survey on the HIV/AIDS situation in China conducted by Zhang Kong-Lai (professor and chairman at the Department of Epidemiology, Peking Union Medical College) and Chen Wei (director of Shandong office for HIV/AIDS surveillance) explored four key areas: unsafe blood, projections, testing, and Chinese remedies. Deficiencies with the national blood supply system pose a potential risk of HIV infection via blood transfusion. The national blood supply system, which gets 70-90 percent of its blood reserves from commercial blood sellers, faces problems such as the detection of HIV among blood sellers and in blood bank stocks as well as inadequate infection control approaches in local hospitals. In response, the Ministry of Public Health issued regulations in 1994 for stricter management of blood donations. In addition, a campaign encouraging voluntary donation has been launched. The projection of HIV infection in China in year 2000 by Chinese experts is dependent on the incidence rate. Assuming the current low level of incidence, 50,000-100,000 individuals are projected to be HIV-positive. A higher level of incidence results in the projection of 80,000-190,000 HIV-infected individuals. The authors believed in the worst case scenario where a considerably higher incidence rate is assumed and the number of HIV-positive individuals in China is projected to be 110,000-250,000 by year 2000. There is no mandatory testing for individuals at risk for HIV infection in China. Instead, for all HIV testing, informed consent is required. The results are kept confidential and the HIV-infected are allowed to continue working. Staff at local prevention centres conduct periodic examinations on the HIV-infected and send them to local designated infectious disease hospitals when they develop symptomatic HIV disease. Substantial research, including collaborative clinical trials between Chinese and Western physicians, have been carried out to determine the effectiveness of Chinese herbs in treating AIDS. The Academy of Chinese Traditional Medicine, which treats African patients with Chinese herbs, reports promising results.
In China, many of the behaviors at risk for HIV infection are also criminalised. Therefore, criminal
law has been used as a public health mechanism to control the spread of HIV. On the other hand,
public health efforts, which educate people on risk reduction measures, may be perceived to
encourage illegal behavior and hence contradict criminal law. In the 1950s, prostitution in China was allegedly insignificant in numbers and punitive intervention was correspondingly low. After the end of isolation, in the face of rising prostitution and sexually transmitted diseases, punitive intervention started to increase. Currently, public security personnel are authorized to forcibly round up prostitutes and detain them in re-education facilities from six months to two years. In contrast, individuals who pimp, traffick in women, or peddle pornography face sentencing. For instance, individuals who commit serious offenses in the abduction and selling of females face a maximum sentence of 'up to and including the imposition of death.' China's proximity to the Golden Triangle region of Southeast Asia (Thailand, Laos, and Myanmar) makes it prone to problems of drug abuse and trafficking. With Vietnam joining the Triangle countries in distributing and/or transporting a high grade, injectible heroin through the southern Chinese provinces to Hong Kong and Macau, increased internal cultivation of opium, and greater sophistication of drug traffickers, drug availability and, correspondingly, the risk of HIV infection increases. The Chinese response to the drug problem follows the 'victim-perpetrator' split. Drug addicts are coercively detained in detoxification centers to undergo treatment. On the other hand, individuals who traffick and/or distribute 1 kilogram or more of opium, or 50 grams or more of heroin are punishable by imprisonment for 15 years to life, or by execution. Faced with increasing illegal behavior and perceived moral decline, public security forces have increased their enforcement. During the 100-day 'Strike Hard' campaign instigated on 28 April, at least 100,000 individuals made up mostly of prostitutes, their clients, and drug addicts were arrested within the first two months. The use of criminal law as a public health mechanism, however, raises some concerns. First, the majority of the individuals not arrested continue practicing their high-risk behavior. Second, individuals who practice criminalised behavior develop more covert ways to evade punishment and are thus harder to reach via public education. Third, non-criminal behavior may later be criminalised when drastic measures are perceived to be necessary to combat HIV/AIDS. Fourth, legitimate enforcement can promote the use of the law as a device that discriminates, abuses, and harasses people who practice high-risk behavior. For example, for the 108,782 prostitutes arrested in the between 1985 and 1994, only twelve were found to be HIV positive. Source: AIDS Analysis Asia Volume 3(2), March 1997 |
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The skills development project for sex workers which was funded by Action for AIDS, Singapore, was aimed at increasing condom use among sex workers, and preventing AIDS and Sexually Transmitted Diseases among them. This project stressed on equipping sex workers with condom negotiation skills so that they can persuade their clients to use condoms. We decided to use this strategy because we found that the main reason for low condom use among sex workers was their inability to get their clients to use condoms. Almost all the sex workers (more than 90%) knew about the dangers and seriousness of AIDS and the benefits of condom use. They were keen to use condoms but they succeeded in getting only half of their clients to use condom. Some sex workers did not ask their clients to use condoms because their brothel keepers were not supporting them. Others were afraid that they might lose their clients to their friends if they insisted on condom use. Thus the skill development project was designed to address the underlying causes of the problems of low condom use.
The project was implemented in January 1994 and is still being followed up. It used three main strategies, namely: (1) developing the sex workers' ability to get their clients to always use condoms (2) getting the brothel keepers and health staff to support the sex workers to use condoms (3) getting the sex workers to support each other to use condoms and refuse non- condom-using clients so that none of them would lose their clients to others. The programme for the sex workers consisted of two two-hour small classroom sessions (of about 16 sex workers in each class) held three to four days apart, and follow-up classes at three months, one year and two years thereafter. The classroom sessions were held in the Department of STD control and were conducted by the health staff and the project leader. During the classroom sessions, sex workers were shown video clips and given comic scripts on how to persuade difficult clients to use condoms and how to refuse clients who did not want to use condoms. This was followed by group discussions and sharing of tips and experiences by the sex workers. The video clips and comic scripts were produced by the project team. Volunteers among sex workers acted in the video clips and demonstrated practical ways to negotiate condom use. Our male health staff at the Department of STD control acted as difficult clients. The follow-up sessions concentrated on discussing the problems of and solutions to condom use such as condom slippage, breakage and pain. The Department of STD control also held regular group sessions with the brothel keepers to encourage them to support the sex workers. They were checked regularly to ensure that they supported the sex workers and reminded clients to use condoms. Posters with specific messages directed at clients to always use condoms were distributed to all sex workers and brothel keepers.
We have been monitoring the project regularly and found it to be effective in increasing condom use and reducing sexually transmitted diseases among sex workers. In 1997, three years after the project's implementation. condom use has increased to 96% and gonorrhoea (one of the sexually transmitted diseases) has been reduced by more than 75% The project team would like to thank Action for AIDS for their generous funding this project.
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The theme for the 10th annual World AIDS Day is "Children Living In A World
With AIDS". This theme reflects the fact that AIDS affects all children around the
world because it is part of the world in which they live.
Today's children are growing up in a world with AIDS. They are having to cope not only with issues and problems that have long existed and are now being revealed by the HIV/AIDS epidemic, but also with those that result directly from the epidemic and which, until recently, people only had to face as adults. More children are contracting HIV than ever before, and there is no sign that the infection rate is slowing. Children below the age of 18 are vulnerable to infection through mother-to-child transmission, unsafe blood and injection practices, sex - including sexual abuse, coercion and commercial exploitation - and injecting drug use. Much of this vulnerability stems from failure to respect their rights, including those guaranteed under the United Nations Convention on the Rights of the Child. All children of the world henceforth face a life-time of risk from HIV. They are exposed to the risk of HIV infection at different life stages as they grow into adulthood, because of circumstances such as sexual exploitation and abuse, or simply due to violation of their rights to information, to education and services. There is a need for greater recognition of the specific needs of girls and especially vulnerable children, both boys and girls, such as refugees, street kids, and children exposed to drug use. In short, children and young people in all countries, and those who care for and are responsible for them, are having to adjust and adapt to this new world. The global epidemic is continuing to accelerate. There is, as yet, no vaccine against the virus. Neither is there a cure. For all the welcome recent advances in scientific treatments, there also remains great uncertainty as to whether and how such treatments could ever be made accessible to the vast majority of people living with HIV who are in the developing world. AIDS has changed the world for children. The United Nations Convention on the Rights of the Child provides a framework for promoting and protecting the rights of children which can minimise the impact of the HIV/AIDS epidemic on them. Yet, despite its almost universal ratification, the response to infected, affected and vulnerable children has remained inconsistent. Internationally, AIDS programmes for children have been ad hoc and fragmented and have lagged behind those for adults. In many developing countries, this situation is worsened by poverty and other factors, such as wars and the resulting social breakdown of many communities.
The United Nations Convention on the Rights of the Child defines a child as every human being below the age of 18 years. UNAIDS, the Joint United Nations Programme on HIV/ AIDS, estimates that there are already over 23 million people world-wide living with HIV, over 40% of whom are women. In some of the worst affected countries, up to 40% of women attending antenatal clinics in urban areas are HIV- infected. By the end of 1997, a million children under the age of 15 are expected to be living with HIV, over 90% of them in developing countries. Since the beginning of the epidemic, according to UNAIDS and WHO estimates, well over 2 million HIV-infected children under the age of 15 have been born to HIV-infected mothers, and hundreds of thousands of children have acquired HIV from blood transfusions or through sex. Because HIV infection often progresses quickly to AIDS in children, most of the close to 3 million children under 15 who have been infected since the start of the epidemic have developed AIDS, and most of these have died. In many developing countries, some 50% of the population is under the age of 18 years. Directing prevention efforts to children is crucial in minimising the further spread of the epidemic. Adolescents are especially vulnerable to infection through sex or drug injecting. Commercial sexual exploitation and domestic sexual abuse of children are contributing risk factors for HIV infection among children. Figures reported to the 1996 World Congress Against Commercial Sexual Exploitation of Children indicated that world-wide more than 1 million children enter the sex trade every year.
Through the 1997 World AIDS Campaign, UNAIDS and its partners aim to bring to the attention of the international community the many facets of the epidemic's impact on the lives of children. The campaign will offer a platform for children and their communities to voice their concerns and aspirations in relation to the epidemic and to support the development of appropriate responses. This briefing summarises how the epidemic is having an impact on children who are infected by HIV, those who are directly affected by HIV/AIDS in their families or communities, and the children who are at risk of HIV infection. It outlines the global and national action needed to support children and their families as they face life in a world with AIDS.
The socio-economic costs of AIDS are affecting the ability of developing economies to sustain their development gains - and this has enormous repercussions on children. While children are an increasing part of the AIDS problem, they are also a critical part of the solution. "We have a window of hope between the ages of 5 and 18 years", says Dr Sam Okware, Uganda's Commissioner for Health. "If that group can be educated, if their behaviour change can be modulated to ensure they do not have risk behaviour, I think we have a future". Education and empowerment combined with the promotion of children's rights are believed to be key to HIV/AIDS prevention by leading agencies such as UNICEF and UNESCO.
If children really do offer a "window of hope" for influencing the future course of the AIDS epidemic, understanding their needs and perceptions will be critical. At the same time, it must be recognised that children are not in this world alone. Parents, school teachers, religious and community leaders must also be involved in developing programmes for children if they are to be accepted by the community and help build a safe and supportive environment. AIDS is the most publicised disease in the world, but its impact on children has received an inadequate response. Adults can and must do their part to ease the suffering of children infected with HIV, help children in AIDS-affected homes and communities, and enable all children living in the shadow of HIV risk to grow up uninfected. N.B.: Information in this article is taken from the UNAIDS webpage at the following URL: http://www.us.unaids.org/highband/events/wad/1997/wac.html
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Ever ridden for the cause of Aids? Meet Audrey Tang, a Singaporean jazz drummer, in Boston, Massachusetts. Come 12 September, Audrey will be joining three thousand riders to ride 275 miles from Boston to New York in three days. She will raise $1500 for Boston's AIDS crisis centres involved in research and prevention. All this and would you believe that Audrey didn't own a bike in the first place? The following is an account of my interview with Audrey.
E: How did you first get to know about the Ride?
E: What prompted you to get involved?
E: You earlier expressed regret at not being more active in the fight against
AIDS in Singapore. Could you think of plausible reasons as to why you were
not more aware or involved in Singapore?
E: Did you know anyone with HIV or Aids before taking part in the Ride?
E: How, if at all, did your initial impressions of persons with HIV or Aids
change once you got to know them at a personal level?
E: What is the hardest part in participating in the Ride?
E: What are some of the things that came out of training for the Ride
besides the body ache?
E: How's the atmosphere like over there - what does it feel like to train and
be involved in the fight against AIDS in Boston?
E: Is taking part in the Ride a first step to getting more involved in raising
HIV/AIDS awareness and/or promoting AIDS research?
E: What is your family's response to your participation in the Ride?
E: What would you say to a Singaporean who resists volunteering for the
fight against AIDS simply because she or he doesn't know anyone with
HIV/AIDS to begin with and feels that HIV/AIDS is irrelevant?
E: What is your ultimate aim in taking part in the Ride? Audrey will be taking part in the Boston-New York Aids Ride 3 in September 12-14. For more information on the Ride, see http://www.aidsride.org.
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Many of us feel unbelonged in our country of birth. Many of us born in Singapore who were
raised in Singapore schools where we were taught to sing the national anthem and pledged our
lives to the new nation -We the citizens of Singapore ..+ would realize that our utterance, in later
years, to be simply vacuous and fragile. We were taught to believe, that when we served our
national service that there would be an end to foreign domination. Within a short number of years,
we realize that we are no longer -equal+. We can be brought up on charges of serious indecency,
unnatural offenses. If convicted, we could be exposed to public humiliation, a fine or jail sentence
and recently, flogging. And if you are a PR holder, you could be deported. We are morally
excluded or simply absent from the national imagination. Not being home in Singapore is a matter
of realizing that home in Singapore was an illusion of coherence and safety based on the
exclusion of specific histories of oppression. We have to sneak around, lie and remain silent about
our lives, loves and lost. But this does not simply apply to just our -lifestyles,+ -orientation+ or
-preference+ whichever word chosen to describe us. For many, our volunteering with AFA lies in
the shadow of our moral exclusion.(refer to Patton, Fee & Fox ,and Brandt ). Even heterosexual
female volunteers are forced to sneak around to do our caring work. They hide their generosity
from their friends and loved ones. Their silence, in effect, has allowed missed opportunities for
education and prevention in their families and workplace. Is this a -gracious society+ when a
certan segment of the nation has to sneak around performing their caring work? Or can we ever
be a -caring society+ when groups of people are morally excluded from fully participating in
society? If the state is encouraging and -campaigning+ for a caring and gracious society, shouldn+t
these volunteers be recognized, commended and awarded for their altruism, love and care? The
state+s encouragement and campaign to be courteous and gracious to the sick, elderly and poor,
while commendable, laudable and definitely needed, have to be extended to the -other+ citizens
who are presently -down+ with the virus. If not, their lives and those who care for them are made
more difficult and complex. This article is to provide a glimpse of the works of volunteers of AIDS,
struggling against the devastation wrought by the virus, and the stigma that surrounds the illness.
**** AFA is part of a cadre of AIDS organizations that was formed to perform and address the needs of PWAs that so many traditional health care organizations seem to ignore especially during the early years of the epidemic. They are set up, as a space, to provide an exchange of ideas by its members, to function as a supportive environment and to develop an important public health role in education, prevention and dissemination of HIV information. In the eighties, we witnessed a global explosion of AIDS voluntary organizations to care for and work with PWAs and sero- positive individuals (read Altman, Kayal and Shilts ). The passion, strength and vitality of volunteers have to be channelled into appropriate roles where they can be tactically and strategically used in the fight. At the same time, they can be slotted into positions where their needs are gratified. Like many community-based organizations, AFA runs on a tight budget and staffed only by the will of committed volunteers and a few poorly paid staff. It can be quite frustrating for volunteers who are eager to help, care and assist - diluting their sense of immediacy and at times, saps their energy and patience from unresponsiveness. And this could be sometimes aggravated by the -cliquishness+ of volunteers, the lack of coordination and high-turnover rate of volunteers (for the history, strength and problematics of AFA, please refer to Leong ). And with the rise in the number of HIV cases last year, the work of volunteers and AFA are more important and crucial. It is 6pm. Meng Khim crouches over the desk on the third floor office at Race Course Road, reading the Straits Times. On the desk, he has a packet of cut fruits and his bottle of Evian water. He says that he spends his time reading when he is performing his shift for the AIDS Counseling Hotline. With slow elaborate movements, he chews his fruits - masticating the cut edges of pears, apples and sapping the Vitamin C-rich juices of the oranges. Occasionally, he switches on the TV to be mesmerized by the flickering screen. Sometimes, the phone will ring. He fields two or three calls a night. As Meng Khim describes, -It is quite boring!+ This scene has repeated itself for the last two years. Every six weeks, Martin works in the Anonymous counseling site. Because he is a nurse by profession, AFA has placed him in a unique position to draw blood from its clients. At this stage of the process, the client has undergone the pre-test counseling. Initially, Martin wants to be a counselor. He wants to talk to clients, assuages their anxieties and soothes their tension. (Un)fortunately, his training places him in a unique position to tender to the tricky problem of drawing blood. His acquiesce may be a blessing since he told me that he finds that clients have more questions, are more anxious and more nervous, even after the pre-test counseling. While he draws blood, he suckles on their anxiety and calms their nerves.
Volunteers congregate in AIDS organizations for a myriad of reasons. In a study by Suzanne
Ouellette and her colleagues of AIDS carers in New York+s Gay Men+s Health Crises. She found
that volunteers descend and gather in organizations for these reasons, namely, to make some
response to the AIDS crises; to be able to have some contact with others who are afflicted by the
epidemic; to do something besides worrying about getting sick; and to increase the purpose and
focus of life. Not unlike the predominantly gay volunteers and straight women in Ouellete+s study, I
found that the very few AIDS volunteers that I spoke with descended on AFA for the same
reasons. AFA volunteers are stirred by a sense of social injustice, moved by passionate pleas
from within to perform their caring responsibilities and struck by friends with AIDS. They come to
AFA wanting to help, desiring to be useful and anxious to care. Martin:
I know of many friends with HIV+ and I witnessed a lot of deaths when I was working on my post-
graduate training. When I was in England, I worked with a diverse group of friends. He gotten to
know them, learned about people+s attitudes towards AIDS and wanted to help. I want to give
back to the people who have changed me. I have a sense of mission to help.
For Lai Lai, she met a friend who was afflicted with the HIV+:
I have a lot of gay friends in Sydney and some of them are HIV+. But the impact of AIDS did not hit
me when I ran into a she-friend who is HIV+, apparently gotten from her promiscuous husband.
She was suicidal when I spoke to her. It sparked my interest and catalyzed my reactions towards
AIDS.
Having done my stint as a volunteer for a couple of years, it is easier for me to retreat behind the
monitor and type out my musings about volunteering. Volunteering is filled with ambivalences. It
rewards yet it could also levy a cost. It invigorates but it also drains our spirit and energy. It can be
exciting but also, tedious. However, when I talked to AFA volunteers, the rewards are abundant:
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